As soon as she opens her eyes, she knows it’s going to be a good day.
It’s not always like this.
Some days, she wakes to a medication fog she’ll never really wake from all day. Some days she wakes after never really having slept at all. Her doctor gave her a new drug recently. It’s supposed to help with pain but it keeps her awake at night, sends spasms of movement through her arms and legs till she has to get out of bed. “It’s like a seizure or something,” she says, with that half-shrug—“like a seizure” isn’t exactly new to her. She’s matter-of-fact, discussing all this. “Like a seizure” isn’t the worst thing.
But today isn’t one of those days. Today the stairs are stairs, not Mount Everest, and that’s good, because she’s got plans. The 4H club she runs at City View Charter school is going to meet today—they’ll build greenhouses out of plastic bottles, create art from found objects, learn respect for the world and for each other. “Did I tell you about Mr. Ryan?” she says, and then she does. “I met him in the hallway yesterday…” Mr. Ryan, it turns out, isn’t one of the teachers—he’s a kid who thinks he’s the only person in the world. “But I ran into him yesterday and he said, ‘Good morning, Miss Tina, how are you?’ It was a miracle. He actually acknowledged another human being.” She laughs. “I’ve only been hitting him over the head for a year…” She says it’s a little thing. No one’s going to notice that this third-grader has finally learned to ask “How are you?” But in her eyes, there’s also a hint of pride.
So today she won’t think about the diagnosis, the nerve disorder called fibromyalgia that’s going to be with her the rest of her life, that weighs her down some days like a ton of bricks or maybe just her body exploding. To the 4H kids she’s loud, fun, crazy Miss Tina, as generous with praise as she is quick to flare up, to shout across the playground, “Hands off each other, now. I said NOW.” To the regulars at the Goodwill bins, her next destination, she’s the woman who buys shoes for resale and always has time to tell a quick story or listen to someone else’s. She’s a footwear expert, a creative mind, a mentor for kids, a writer. She goes until she crashes. When she crashes, she buys fast-food and spends the whole day in front of the TV, or she doesn’t get out of bed at all. Some days, she doesn’t know where it’s all going.
“I’m all over the place,” she says. She’s standing in her basement room, overflowing with art supplies, shoes for resale, dirty dishes and stale food that have been down there for weeks. Half-finished projects cover every surface, interspersed with knickknacks—“It just looked so cool!”—that she’s picked up at the Bins.
“What I fear most is that people will think I’m ridiculous.” She half-shrugs again. “Am I?”